Health Care

Health Care Teams

There is no right or wrong way in caring for your child with Duchenne

The team will be led by a neuromuscular expert who will take overall responsibility for the care of the Duchenne individual. Musculoskeletal management requires a team approach, so many other specialists will be involved. A comprehensive approach is necessary to ensure quality care for the individual with Duchenne and to foster communication between the various specialists. Much like a machine’s gears work together to operate effectively; each specialist must also work together and maintain clear, consistent communication. Each member of the team will contribute their expertise to support and enhance the well-being of the individual throughout their lifetime.

Health Care Team Members

The neuromuscular team will begin with a provider designated as the team leader, which is often a neurologist. A pediatrician or primary care provider is a necessary part of the team. Depending on the needs of the individual, members of the neuromuscular health care team may include:

  • Cardiologist
  • Pulmonologist
  • Gastroenterologist
  • Endocrinologist
  • Orthopaedist
  • Psychiatrist
  • Genetic Counsellor
  • Physical Therapist
  • Dietician or Nutritionist
  • Occupational Therapist
  • Ophthalmologist
  • Speech-Language Pathologist
  • Social Worker