I wasn’t there when you were born, but you still came into my life… showing me everything that I was missing – (my boy), "Baboy" transpired soon after an inside joke - in your minions phase, and it stuck with us through the years. There is no comparison to the day you made me a “boy mom” for the first time. I had this automatic feeling of protecting you, with big dreams of what life would be like with you,...
After the initial diagnosis, the co-founders of QJDMD set their minds to leaving a legacy for a boy with a fatal, yet rewarding diagnosis of Duchenne Muscular Dystrophy - never letting the community fight alone. QJDMD remains a non-profit organization, located within the Republic of South Africa, striving to create a pathway and lead South Africans to support and care, during their early stages of diagnosis. Today, our mission for creating awareness, leaving a legacy for Quade and providing fundamental...
This happened too soon - too soon after the pathology trauma on Monday 16 May 2022 - re-testing the same bloodwork after meds adjustments. This time around was a little too fresh, too raw... as we walk in he knows what's coming - his fear sets in much sooner than usual. He steps in and sees the multicolored tubes that have now become a part of his life. This time he screams with phrases like: "I can draw my own...
Is there any way that we will ever get used to this? Is there going to be a year where I'll be able to say: "We are in the clear Baboy. We don't need to do more blood tests."? Or will his screams in Pathology, continue to create nightmares as we sleep?! As daddy carries him in... I begin to fill out the paperwork, and I politely let the nurse know that he is a difficult client - as I know what's...
